Starting Literature Review. April 2024

16/02/2025

4. Literature Review


Initial Reading:


This study seeks to add to the work that has been done in the UK already, mainly by Dr. Carolyn Blackburn and Professor Barry Carpenter. (Blackburn, C and Carpenter,B (2010), Blackburn, C (2021) and Blackburn, C (2017)) This work was mainly with younger children and whilst some strategies for learning mathematics are suggested and some will be relevant most are aimed at younger children and more is needed for KS3 and GCSE. There is also more general work for carers and others to help inform and understand the issues that children have. (Catterick, M and Curran, L (2014)). These developmental, behavioural, learning, and social issues highlighted, will also impact work in the classroom.


It has been shown in other countries that achievement in mathematics is not as good as it should be for pupils with FASD (Kully- Martens, K et al (2018). Also, Kennedy et al reported that there is no longitudinal studies that track pupils as they transfer across the age groups. This concurs with findings reported earlier from the maths SEND work in the South London Alliance of Schools which reported on the difference in achievement in KS1 and 2 but did not progress on to KS 3 or 4 (Seleznyov, S, (2020))


The National Curriculum KS3 and KS4 programmes of study require teachers to provide lessons and programmes of study appropriate to each child’s needs. The strands of the National Curriculum at KS3 and at KS4 are fluency with reasoning, solving problems by applying mathematics to routine and non-routine problems;  number and calculations, algebra, shape and spatial reasoning, handling data and probability. Many children with FASD have strengths in subject areas or with certain skills. However, abstract thinking and abstract concepts are a problem and cause difficulties, so reasoning in the sense of using logical structures to give a series of steps to form a proof will be an area of difficulty. This is why Mathematics, due to its abstract nature is a problem for children with FASD. (lebel, C et.al (2010).


Studies in the USA and Canada have shown through longitudinal studies that maths achievement is lower than would be expected, even taking into account the general learning difficulties (Crocker,  N et al (2015)).  Rasmussen found that the two main areas of difficulty were Calculation, both doing exact valuations and approximations and an ability to grasp the size of numbers and their magnitude. (Rasmussen, C and Wyper, K)


There is research and studies in the USA and Canada about teaching programs in mathematics that boost classroom work; one of which is the MILE program.  (Kully-Martens, K et al (2018) and Coles, C et al (2008)).  MILE is an abbreviation for Maths individualised learning experience and this indicates that pupils with FASD benefit greatly from 1 to 1 support. However, MILE is aimed at children between the ages of 3 and 10. So there is a need to extend this to adolescents aged 11-16. Kully-Martens, K, et al (2018) reported that children who had the one-to-one intervention performed significantly better than the control group when their work was assessed. So, this is something that would seem to have promise for schools in England. However, this would not be possible without specialist training for those giving support as suggested by Lord Addington in a recent debate in the House of Lords (HL Deb 12 February 2024 Vol 836).


There are also difficulties reported with children being assessed and then a lack of appropriate school places being made available with the correct level of support in place. It is also a problem that the special free schools set up to help support these pupils may not be in the local area for the parents. When linked to difficulties teachers have in supporting pupils with SEND then the possibility of 1 to 1 support doesn’t seem realistic at this stage. As was mentioned earlier by Ting Was Chu (2023) there is a need for greater training for teachers. This point was echoed by Lord Addington when he questioned ministers about SEND provision and teacher training. (HL Deb 12 February 2024). In the same debate, Baroness Bull made the point that 6% of UK children are affected by dyscalculia but there is no official government recognition of dyscalculia. Given that there are 3.2% with FASD surely this point can be extended to include FASD. 


All the points above have highlighted the need for study for this age group and with mathematics which is a known area of weakness. Work has been done in this and other countries that can be built on.  However, the reported difficulties in implementing the government’s SEND regulations. Sandra Butcher (Butcher, S, 2021)   states that 80% of children with FASD are not being diagnosed by the Clinical Commissioning Group that is responsible for doing so. This along with higher absence rates and parent frustration with the lack of suitable local school places, gives the impression of a very difficult situation for both children and for their parents. There are parent support groups, notably in the North East and in the Manchester region and these will be very valuable in identifying where the Pupils with FASD are learning geographicallyAs has already been shown, there is a large cohort of pupils (102,371)  with FASD and no recognition from government, so there is an urgent need to research this issue, in order to provide evidence for action.


Bibliography

    

Adoption UK Education Fact Sheet (England)  Fact Sheet 1: Common Strengths of Learners with FASD. Available at https://www.adoptionuk.org/education-factsheets-fasd. (Accessed 11 February 2024)

    

Adoption UK Education Fact Sheet (England)  Fact Sheet 3: Educational Transitions -starting a new school or ELC. Available at https://www.adoptionuk.org/education-factsheets-fasd. (Accessed 11 February 2024)

    

Adoption UK Education Fact Sheet (England)  Fact Sheet 4: Flexible FASD Support Strategies for Education Staff. Available at https://www.adoptionuk.org/education-factsheets-fasd. (Accessed 11 February 2024)

    

Adoption UK Education Fact Sheet (England)  Fact Sheet 5: Additional support in Education. Available at https://www.adoptionuk.org/education-factsheets-fasd. (Accessed 11 February 2024)


Andrews, J, Robinson, D and Hutchinson, J (2017) Department for Education: Education Policy Institute. “Trends in Educational Attainment and Disadvantage.”Available at: https://www.gov.uk/government/collections/national-pupil-database (last accessed 20 February 2024)


Blackburn, C   (2017) Developing Inclusive practice for young children with Fetal Alcohol spectrum disorders: A framework of knowledge and understanding for early childhood workforce, (kindle Edition), Routledge


Blackburn, C (2021) chapter 29, Supporting the Child with FASD in the Classroom in  Raja A. S. Mukherjee and Neil Aiton , eds. Prevention, Recognition and Management of Fetal Alcohol Spectrum Disorders, Springer, https://doi.org/10.1007/978-3-030-73966-9_29


Blackburn, C (2021) chapter 9, Identifying the Child with FASD in Educational settings in  Raja A. S. Mukherjee and Neil Aiton , eds. Prevention, Recognition and Management of Fetal Alcohol Spectrum Disorders, Springer, https://doi.org/10.1007/978-3-030-73966-9_9


Braun, V and Clarke, V (2014) What can “thematic analysis” offer health and wellbeing researchers? Pub in Int J Qual Stud Health Well-being. 2014; 9: 10.3402/qhw.v9.26152. Published online 2014 Oct 16. doi: 10.3402/qhw.v9.26152

  

        

Butcher,  S (2021), chapter 35, Approaches to National Support groups: Advocating for resources at a National levelu in       Raja A. S. Mukherjee and Neil Aiton , eds. Prevention, Recognition and Management of Fetal Alcohol Spectrum Disorders, Springer, https://doi.org/10.1007/978-3-030-73966-9_29


Campbell, Y  (2019) Meeting the educational needs of children with Fetal Alcohol Spectrum Disorders  (FASDs) PhD Thesis submitted to Manchester University


Catterick, M and Curran, L (2014), Understanding Fetal Alcohol Spectrum disorders: A guide to FASD for parents, carers and professionals (kindle edition), Jessica Kingsley

Coles, C, Kable, J, Taddeo, E (2008), Math Performance and Behavior Problems in Children Affected by Prenatal Alcohol Exposure: Intervention and Follow-Up

March 2008 . Journal of Developmental & Behavioral Pediatrics. 

DOI:10.1097/DBP.0b013e3181966780


 Crocker, N, Riley, E, and Mattson, S (2015), Visual-spatial abilities relate to mathematics achievement in children with heavy prenatal alcohol exposure in Neuropsychology. 2015 January ; 29(1): 108–116. doi:10.1037/neu0000094

    

Davies, K and Henderson, P, Special Educational Needs in mainstream schools. Guidance report. Published by Education Endowment foundation Available from https://educationendowmentfoundation.org.uk › send. (Accessed 11 February 2024)


Davis, P and Florian, L (2004) Teaching Strategies and

Approaches for Pupils with Special Educational Needs: A Scoping Study

Research Report RR516: Available from https://dera.ioe.ac.uk/id/eprint/6059/1/RR516.pdf

(Last accessed 20 February 2024)


Department for Children Schools and families (2010) Breaking the link between Special Educational needs and low attainment- Everyone business.   DCSF - 00213-2010


Department for Education (2011) How do pupils progress during KS2 and KS3? Education standards and research division report RR096


Department for Education (2013), Statutory guidance National curriculum in England: mathematics programmes of  -Key Stage 3. Available at https://www.gov.uk/government/publications/national-curriculum-in-england-mathematics-programmes-of-study (Accessed 11 February 2024)




Department for Education (2013), Statutory guidance National curriculum in England: mathematics programmes of  - Key Stage 4. Available at https://www.gov.uk/government/publications/national-curriculum-in-england-mathematics-programmes-of-study (Accessed 11 February 2024)


Department for Education (2014), Statutory guidance SEND code of practice: 0 to         25 years. Available at https://www.gov.uk/government/publications/send-code-of-practice-0-to-25. (Accessed 11 February 2024)


Department for Education, (2023),Academic year 2022/23 Schools, pupils and their characteristics Available at https://www.gov.uk/government/statistics/schools-pupils-and-their-characteristics-january-2023. ((Accessed 11 February 2024)


Department for Education (2023), press release “Transformational reform begins for children and young people with SEND”, available at https://www.gov.uk/government/news/transformational-reform-begins-for-children-and-young-people-with-send

(Last accessed 20 February 2024)


Dowker, A (2004) What works for children with mathematical difficulties. The effectiveness of intervention schemes. DFES report RR554 available from: www.dcsf.gov.uk/research/data/uploadfiles/RR554.pdf


Education and endowment Foundation (2024) Teaching and learning toolkit. Available at: https://educationendowmentfoundation.org.uk/education-evidence/teaching-learning-toolkit. (Last accessed 20 February 2024)



Fleming, K and Cooke,P (2021) chapter 31, Public Health perspectives on FASD: Prevalence, Inequalities and Prevention in  Raja A. S. Mukherjee and Neil Aiton , eds. Prevention, Recognition and Management of Fetal Alcohol Spectrum Disorders, Springer, https://doi.org/10.1007/978-3-030-73966-9_29


Fletcher‐watson, S 2022, 'Transdiagnostic research and the neurodiversity paradigm: commentary on the transdiagnostic revolution in neurodevelopmental disorders by Astle et al.', Journal of Child Psychology and

Psychiatry. https://doi.org/10.1111/jcpp.13589



HL Deb 12 February 2024 Vol 836, https://hansard.parliament.uk/Lords/2024-02-12/debates/CA562BB8-1236-4ADC-9146-478E1573D933/SchoolsSpecialEducationalNeeds

    

Kable et al. (2007), Bertrand (2009); Coles et al. (2009) Math Interactive Learning Experience (MILE)  Study: Available at, https://charts.intensiveintervention.org/intervention/toolGRP/94dcd2b9344433b7 (Accessed 11 February 2024)

    

Kable, J, Taddeo, E, Strickland, D and Coles, C (2015)

Community translation of the Math Interactive Learning Experience Program         for children with FASD in National Library of Medicine

PMID: 25601483 DOI: 10.1016/j.ridd.2014.12.031


Kennedy, K, Pei, J, Andrew, G,  and Rasmussen, C (2022), Longitudinal Evaluation of Mathematics achievements in children and adolescents with Fetal Alcohol Spectrum Disorders, inJournal of Fetal Alcohol spectrum disorders ,DOI:10.22374/jfasrp.vi4SP1.12


Kully-Martens,K , Pei, J , Kable J , Coles, C , Andrew, G ,and  Rasmussen, C             (2018), Mathematics intervention for children with fetal alcohol spectrum disorder: A replication and extension of the math interactive learning experience (MILE)     program in Research in Developmental Disabilities Volume 78, July 2018, Pp 55-65


Lebel, C, Rasmussen, C, Wyper,K, Andrew, G and Beaulieu, C (2010), Brian microstructure is related to math ability in children with fetal alcohol spectrum disorder pub in. Alcoholism Clinical Experimental Research  2010 Feb 34(2) 354-63 doi: 10.1111/j.1530-0277.2009.01097.x.


Malbin, D  (2017). Fetal Alcohol Spectrum Disorders Trying Differently Rather Than Harder Third Edition.

National FASD, FASD in focus factsheet, FASD characteristics by age

Available at https://dkhelf8ak01yp.cloudfront.net/documents/FASD in Focus AgesStages-FIN.pdf. (Accessed 11 February 2024)


Macleod, S, Sharp,C, Bernardinelli, D (2015) Department for Education,, Supporting the attainment of disadvantaged pupils, articulating success and good practice. Research report DFE-RR411


McCarthy, R, Mukherjee, R, Fleming, K Green, J, Clayton-Smith,J, Price,A, Allely, C and Cooke, P (2021). Prevalence of fetal alcohol spectrum disorder in Greater Manchester, UK: An active case ascertainment study, pub in Alcoholism: Clinical and Experimental Research / Volume 45, Issue 11 / p. 2271-2281, https://doi.org/10.1111/acer.14705


    


National FASD resources for Educators (2010), Facing the challenge and shaping         the future for primary and secondary aged students with Foetal Alcohol Spectrum         Disorders (FAS-eD Project) Secondary Framework, Blackburn, C and Carpenter B.         available at https://dkhelf8ak01yp.cloudfront.net/documents/FAS-eD SECONDARY     FRAMEWORK.pdf. (Accessed 11 February 2024)

National FASD resource, Teaching a student with FASD. Available from https://dkhelf8ak01yp.cloudfront.net/documents/TeachingAStudentWithFASD_FIN REV.pdf (Accessed 11 February 2024)


National Health Service (2020),  Foetal alcohol spectrum disorder, Available at     https://www.nhs.uk/conditions/foetal-alcohol-spectrum-disorder/ (Accessed         11 February 2024)


OFSTED (2021) Supporting SEND Research and Analysis   available at: https://www.gov.uk/government/publications/supporting-send/supporting-send. (last accessed 20 February 2024)


OFSTED (2023) ).  Coordinating mathematics success: the mathematics subject report. Available at: https://www.gov.uk/government/publications/subject-report-series-maths/coordinating-mathematical-success-the-mathematics-subject-report (last accessed 20 February 2024)


Popova, S, Charness, M, Burd, L, Crawford, A, Hoyme, H, Mukherjee, R, Riley, E, Elliott,E (2023) Fetal Alcohol Spectrum Disorders published in nature reviews disease primers, https://doi.org/10.1038/s41572-023-00420-x


Popova, S, Lange,S, Shield, K, Mihic, A, Chudley, A Mukherjee,  R, Bekmuradiv, D and Rehm, J (2016) Comorbidity of fetal alcohol spectrum disorder: a systematic review and meta-analysis. The Lancet, 2016; DOI: 10.1016/S0140-6736(15)01345-8


Qualifications and Curriculum Authority (2009) Planning, teaching and assessing the curriculum for pupils with learning difficulties Mathematics. Available from www.qcda.gov.uk/library/assets/media/P-scales-mathematics.pdf (last accessed 20 February 2024)


Rasmussen, C and Jeffrey Bisanz, J (2009)  Exploring Mathematics Difficulties in     Children With Fetal Alcohol Spectrum Disorders in Journal of child                 development perspectives 15th July 2009. Available at https://doi.org/10.1111/        j.1750-8606.2009.00091.x


Rasmussen, C and Wyper, K,  Mathematics Instruction for Children with Fetal Alcohol Spectrum Disorder: A Handbook for Educators Department of Pediatrics University of Alberta

Available at FASD Network UK, http://www.fasdnetwork.org › maths_and_fasd (Accessed 11 February 2024)


Science Daily (2009), Examining mathematical abilities in children with fetal             alcohol spectrum disorder. Available at https://www.sciencedaily.com/                releases/2009/11/091119193626.htm. (Accessed 11 February 2024)


Seleznyov, S, (2020). Supporting learners in Maths with SEND -  a practical guide for schools,  London South Teaching School Alliance.  Available from https://www.londonsouthtsh.org/london-south-publications, good practice guides. (Accessed 11February 2024)

    

Staves, L, (2024), The scope of special mathematics, available from http://veryspecialmaths.co.uk/downloads/index.htm (accessed 11 February 2024)

Les Staves, Special Education Exchange, Brookfield Road, Leeds. LS6 4EJ.


Ting Wai Chu, J, Jessica C. McCormack, J, Marsh, S and Bullen, C (2022), Knowledge,Attitudes, and Practices Towards Fetal Alcohol Spectrum Disorder in

New Zealand Educators: An Online Survey in  Journal of Intellectual Disabilities 2022, Vol. 0(0) 1–15. DOI: 10.1177/17446295221104618


Trathen, A (2021), Department of Health and Social Care, Fetal Alcohol spectrum disorder: health needs assessment. Available at https://www.gov.uk/government/publications/fetal-alcohol-spectrum-disorder-health-needs-assessment/fetal-alcohol-spectrum-disorder-health-needs-assessment. (Last accessed 20 February 2024)


Wikipedia (2024) Thematic analysis, available at: https://en.wikipedia.org/wiki/Thematic_analysis     (last accessed 20 February 2024)


Zieff, C and Schwartz-Bloom, (2008) Understanding FASD - A comprehensive guide for pre K-8 educators. Available at https://sites.duke.edu/fasd/files/2016/04/FASD_Guide.pdf (Accessed 11 February 2024)


UNICEF A summary of the UN convention on the rights of the child n the Rights of the Child. Available at https://www.unicef.org.uk/wp-content/uploads/2019/10/UNCRC_summary-1_1.pdf.  (Accessed 11 February 2024)


UNICEF How Many Adolescents are there in the UK. Available at https://data.unicef.org/how-many/how-many-how many adolescents-are-there-in-the-uk/ (Accessed 11 February 2024)